About Us FAQs Teleconferences Publications
Clinical Trials Primary AL Secondary AA Familial Physician Information
Patient & Family Support Options Financial Concerns
Grant Program Awarded Grants Grand Rounds Speakers Physician Guides Mutations in Hereditary Amyloidosis
Curve

Links & Resources

Support the OPEN ACT: Orphan Product Extensions Now - Accelerating Cures & Treatments

This OPEN ACT would make available to drug companies an "Orphan Product Exclusivity Extension" which would provide an additional six months of exclusivity to the patent life of the major market drug being repurposed for rare disease treatment. This petition will be delivered to congress urging them to make simple legislative changes in support of rare diseases. Join the Amyloidosis Foundation in support of this important legislation.
http://bit.ly/1BVsheE

 

The Binding Site: http://www.thebindingsite.com/al-amyloidosis

 

International AF Sites:

Australia:

www.amyloidosis.com.au

Brazil:

www.paramiloidose.com.br

Canada:

www.thecasn.org

Euramy:

www.euramy.org

France:

www.cr.amylose-al.fr

Italy:

www.amiloidosi.it

Germany:

home.arcor.de/a-ludwig or www.amyloid.de

The Netherlands:

www.amyloid.nl

Switzerland:

www.amyloidose.ch

United Kingdom:

www.myeloma.org.uk

Israel:

israblog.nana10.co.il/blogread.asp?blog=530202

Israel Facebook:

http://www.facebook.com/#!/groups/108804022537602

Portugal:

www.paramiloidose.com

 

 

Links to Amyloidosis Information

 


lower curve

Make a Donation

 



This website designed and maintained by IGD Solutions Corporation.
  1. pintarbersamamedan.org
  2. https://pintarbersamamanado.org
  3. https://pintarbersamasorong.org/dana
  4. TOGEL
  5. https://elk-mountain.com/